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DigiONE

DIGItal Infrastructure for ONcology in Europe
Building a European federated digital research network
Platinum Technology Fund
DIGICORE
Frankfurt University Hospital, Leeds Teaching Hospital, Maastricht University Medical Center, Oslo Cancer Centre, Cliniques Universitaires Saint-Luc, San Raffaele University Hospital
1 January 2023
12 months
ABSTRACT

DigiONE will create a federated digital research network that links routine, high quality clinical data with routine molecular data information from 6 large cancer centres in 6 countries.

The underlying digital infrastructure provides a minimal description of every patient’s cancer diagnosis, biomarkers, treatment and outcomes in near real time relying a Minimal Essential Description of Cancer (MEDOC) consensus built upon consensus and aligned with international standards. It provides a minimal description of cancer from diagnosis to outcome, and includes all major research inclusion/exclusion criteria, to create a unique resource for high-quality RWE and care quality management.

An open innovation programme leveraging interoperability technologies (OMOP) improving primary data capture with NLP or Natural Language processing solutions. New research services will follow with high quality structured real-world data (RWD) from routine cancer care with privacy-preserving data analytics (federated AI) addressing some urgent clinical research questions that require scale.

Currently, stakeholders and researchers of DigiONE are working on infrastructure-related solutions to support federated data sharing approaches to make the data, models, or digital objects smart in their original silos.

For further information on DIGItal Oncology Network for Europe please click here